A Walk Through My Life

Everyone has their own demons to fight. Read it to know it. Do not be afraid to share your story. Because your story can unlock some else’s prison.



Someone asked me why I was such a downer about Myasthenia Gravis. It was stated that I over did the symptoms and scared people for no reason. I have given this a lot of thought. Would it be any help to others if I wrote about my days of struggle?

“Oh, I woke up and the sun is shining and I took some pills !!”

How in the world can anyone get the word out about MG and the real Life I have with it? The truth is, living with MG sucks and the drugs that help me live with this rare disease suck even more. It’s a devastating disease. I was petrified of losing my independence.

MG is no joy ride. I won’t complain about my life because I’m the happiest I’ve ever been. It’s a testimony of endurance. I consider myself lucky as I’m still here… alive and…

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Osho needs no introduction. ‘OSHO’ the name in itself is a new walk of life altogether. Osho had initiated an entirely unique school of thought which influenced people all over the world. 

This universe always balances itself. The positivity that Osho had, earned him a great deal of opposition as well; from the people who could not align themselves with his teachings. However, the calmness that Osho spread with his meditation techniques; outweighs everything else. Osho’s meditation and teachings are his greatest gifts to this world. Today on Osho’s Mahaparinirvaana Diwas, I pay him my wholehearted gratitude and earnest tribute.


For many of us who do not know the importance of this day, it is today in the year 1990 that Osho left his physical body to attain Mahaparinirvaana beyond enlightenment. It is not the day when he left the world. But the day when Osho returned to the Panchamahabhuta i.e. the 5 aspects of divinity: Air, Water, Earth, Fire, and Sky; to be with us forever. We can hear him in the flowing river, he is ever present in the soothing rustling of leaves, his voice is evident in the drops of rain, the ignited flames arouse the same teachings as the powerful words by Osho, the earthy aroma of soil makes us grounded to our roots as do the Osho sayings. Everything around us and beyond remind us of Osho. 


Today to commemorate Osho’s Mahaparinirvaana day, I attended quite an enlightening meditation session with my husband Sachin at Genius Temple, Indore . This was arranged by Swami Dhyan Alok . The session filled me with all the timeless sayings and teachings of Osho which were much beyond his era. Osho teaches us the communion with oneself to attain a state where the materialistic world amalgamates into the spirituality. Where the desires do not differ from spirituality nor do they hinder one’s progress into the spiritual world. This state can be very easily attained through regular mediation which enriches the soul. There are cosmic vibrations all around you, they just need to be felt. It is not difficult for anyone because:

As Osho says,” We are all in the same ocean.”

“The real communication happens in silence.” So by meditating, we can communicate with our soul and plan for a miracle.

“Meditation is singing with the soul and dancing with own soul and sitting silently listening to its voice talking to you.”

“We need to plant our own garden of thoughts to decorate our soul.” 

Because: “Life is divine. Accept life in all its totality.”


As a personal experience, meditation makes me feel lighter. And raises my soul higher. When you are floating and can see your own body, you are no longer trapped by desires. Be a mystic to travel through the mysteries of this Universe. It is such a true feeling of bliss. Meditation will blossom into your intrinsic nature to confer blissfulness. When you are no longer in conflict with your body, all the tensions, anxiety, fear, and the anguish disappears. So start your inner journey today to gain a higher transcendence of the soul. Experience it to understand it. 


This post is about a recent cultural event – “Pahila Paaul by the CKP Samaj Music and Art Group of Indore. The Marathi phrase “Pahila Paaul” literally meaning “The First Step “ has definitely commenced a pleasantly fruitful journey which will have marvels for all of us in the years to follow. Because music is the only universal language that I know of. This event is the very first of its kind witnessed by me after getting involved with the group. The event was a true spirit lifter for all those who were a part of it. With the outpouring number of comments and appreciation that continued to follow for the rest of the week is a mere gesture to mark the emphasis on it.

“Music produces a kind of pleasure which human nature cannot do without.” – Confucius


I started preparing myself with my “energy saving mode” almost 1 week prior to this event which was worth attending. Just the thought of being able to witness it with family was enough to provide me with a wish to attend the event which turned out to be a great success. As for me personally, it was a very energizing and enjoyable program which will have a lasting memory. It is very important for someone with a chronic illness to merely being able to come out in front of everyone. With the kind of uncertainty that I face due to the fluctuating symptoms of my disease, I am happy that I could attend the event. After attending the event, I could experience the true meaning of the phrase – “Music Heals”; which serves a greater cause of passion than just providing entertainment for a few hours.


Music has a healing effect on every person by calming the anxiety. It helps to release the happy hormones in the body by relaxing the mind. The calming effect of music restores the mental, physical, emotional, and spiritual health. Music evokes the spirit and cognitive responses. Music has an ability to restore speech. Patients who are Music lovers and music listeners respond to treatment better. Mental health affects the physical health of a person.

In the more recent years, today our lives have become materialistic in terms of being bothered about the ability to provide bread and butter for the family. Somewhere we forget to take time out for ourselves. Events like the Pahila Paaul give us a chance to live life to the fullest for a moment by triumphing all the thoughts providing a diversion to mind.

“To live is to be musical, starting with the blood dancing in your veins. Everything living has a rhythm.” – Michael Jackson

The credit of ensuing impact of re-inventing the cultural identity by putting up an excellently organized music concert, definitely goes to the entire team under the able guidance of CKP Samaj President Dr Vijay Pradhan and the convener Mrs. Aboli Dighe. Superb execution and music coordination was demonstrated by all the musicians along with the performers. The amount of enthusiasm shown by the house-full audience to encourage the organizers as well as the participants by boosting their morale will surely bring out more of such events which revitalize our cultural identity. Such cultural activities remind us that hobbies are not just for killing time but are instrumental in bringing out the best out of a person by giving a reason to be presentable. It needs immense courage to stand before an audience and be able to hold them right from the commencement to the end of the program. This is exactly what “Pahila Paaul” did. Kudos to the team members.

“Music doesn’t die” – Leo Tolstoy


The art exhibited by the silent, spoke all the emotions aloud. To tantalize the taste buds and for satisfying the “chota hunger” in the midst of mesmerizing singing and dancing event, we were provided with a decent quality authentic CKP style food and tasty snacks stalls with an innovative touch to the recipes. We hope to attend many more events revitalizing the contemporary art, dance, and music. Next event is very much awaited!!

Blogger Recognition Award !!

I am super excited and very happy to share the news that I have been recognized in this wonderful blogging community. It is very encouraging and motivating to have received this award.

Thank you so much, Kristin from www.thiswifeandmommylife.com for nominating me for this BLOGGER RECOGNITION AWARD. Kristin writes a very realistic blog about motherhood and marriage. 


Since I have received this award I am hereby nominating fellow bloggers whose blogs are quite helpful to check out. I admit that the number of blogs nominated by me is not much but I assure the readers that all the nominees are truly very well deserved.

So here are the rules:

Blogger Recognition Award Rules

How did I start my Blog:

My blog is a child of inspiration given by my most beloved persons and I cannot thank them enough for this; because, over the short span of time – writing posts has become a coping mechanism to anxiety for me. You will understand what I mean if you read my story An Invisible Disability. It is the aim of my life today to de-stigmatize chronic illness due to some of the worst experiences of my life. I do not wish ignorance to put anybody in the phases that I went through because of the wide spread lack of awareness.  

My advice to new bloggers:

GET INVOLVED: Consider your posts as a piece of writing that you yourself truly believe in. It will motivate you to research more about the topic that you are writing on. It is very important to be well versed with what you are writing. 

BE RESPONSIVE: You are connected with your readers through your posts. Hence, it is of utmost importance to respond to the comments that you receive. Also, add a Contact Me page or Details where you can be reached by your readers to clarify any doubts that they have regarding the information mentioned in your posts.

I would like to nominate:

  1. Ankita from ankznrn.blogspot.in.Your blog is so versatile. I appreciate you not being confined to a particular niche. You have come out of your comfort zone or rather made every zone comfortable to you. Congratulations !! Your blog is quite interesting and worth following.
  2. Mayuree from https://ainutalkies.wordpress.com/.Being a newbie your have taken up quite controversial but important topics. I can relate to the social pressure regarding these issues in India. I am happy you chose to write about things like IFV and Adoption. It will help people to widen their outlook. It is something which everyone can benefit from. Your posts encourage and inspire the readers.
  3.  Kyla from https://www.thekylaeffect.com/ You make me want to travel to all those wonderful places. I loved your DIY section as well. Wonderful outlook at how different things can be put to use.
  4.  John from The Bipolar Battle You are doing a great job. Kudos to you. There is a lot of stigma associated with these types of disorders. People don’t understand the depth of it and rather than simplifying the suffurer’s lives, they make it more and more difficult for the afflicted to live. You are helping them achieve what they deserve. I loved your blog !!  
  5. Blackellis from https://blackellis.ro/ You have a very strong content. The quality of your posts is consistent. I enjoyed reading your posts. I would love to try out some of the awesome tips recommended in your posts. I was really impressed by the amount variety you have on your blog posts.

Congratulations to all of you !!

I would love to read your posts about receipt of this encouraging Blogger Recognition Award. Please drop the link below so I can check it out. All the best and enjoy nominating others.


✌All I have is HOPE 😇

HOPE – a word that has different personalised meaning for different people. People say “Nothing is lost if Wealth is lost but everything is lost if HOPE is lost.” Each of us have a HOPE for a brighter future.

 I desire understandably to have those whom I love or know, care enough to take the time to

1) Listen and be pro-active to find about my life, and then 

2) Invest and pour after understanding.

Everyones life is unique. Mine is a bit difficult due to health issues and limitations. Read my story at 


My life is different.. very different, 


At some point, my worth cannot be caught up in the conditioned fray that I must prove the validity of my struggle in order to be loved and accepted. Our lives are not contingent on one another. 

 So it is OK if I walk away  from those who do not pursue a true understanding of who I am and what I face. Because frankly speaking I deserve a much better life than MG. Currently, I do not have an answer to when will I be cured neither will I ever have. 

All I have is HOPE !! 

Courtesy: Myasthenia Gravis Unmasked 

I hope for the best but always be prepared for the worst !! 

A Walk Through My Life


Someone asked me why I was such a downer about Myasthenia Gravis. It was stated that I over did the symptoms and scared people for no reason. I have given this a lot of thought. Would it be any help to others if I wrote about my days of struggle?

“Oh, I woke up and the sun is shining and I took some pills !!”

How in the world can anyone get the word out about MG and the real Life I have with it? The truth is, living with MG sucks and the drugs that help me live with this rare disease suck even more. It’s a devastating disease. I was petrified of losing my independence.

MG is no joy ride. I won’t complain about my life because I’m the happiest I’ve ever been. It’s a testimony of endurance. I consider myself lucky as I’m still here… alive and breathing.. and with my family.. even though I struggle every day. My heart is still beating and I can still breathe.

Sometimes we just have to live in the moment. Take each day a step at a time… things don’t get easier as such. ..You just learn to deal with them in a completely different way !!

I’m not a happy camper when I’m sick from the drugs, the weight gain, and puffy body. This disease IS scary. MG has a mind of its own and you never know where it will take you. But as they say – The best future is forgotten past !!

I began this journey feeling like the only person in this world that had to live with droopy eyes and double vision. I felt guilty for lying on the couch instead of working, cooking or folding clothes. But now I have found people who know exactly how I feel and what I go thorough to survive. Because they too face the similar situation.

“You look Good, has your illness improved”, I am sick of hearing these words from people especially the ones who know me but do not take the time to listen when I try to explain the condition. Too much ignorance out there… and I must keep people around me aware of what MG presents, to keep myself calm and not get flared up at people’s comments . Life is not peaches and cream !!

Just getting dressed in the mornings is sometimes a struggle and I need a reminder to myself to continue being brave… one real big weakness is eating and swallowing. I cannot go outside when the temperature is in excess. A number of times I have been crossing a road and a car appears from nowhere. I try to walk faster but my legs seem to slow down. I can no longer spend more than an hour or two in the market shopping goodies. Some days i hurt all over… i ACHE because my muscles don’t support my body and i have HEADACHES because my eyes won’t focus and there is the feeling of total FATIGUE that robs me of the ability to do the most basic of the tasks.

Some days when I am feeling great I push myself. If I do too much I pay for it that evening and night, my legs cramp up and I have to ease them. Sometimes people think that I’m lazy, but it’s so much more to it than that. I don’t feel like cleaning house all the time, and yes I do feel better when it is clean, but I don’t always have the energy to do it… very frustrating… I get tired easily and mid-days are most tough.

Myasthenia is a messed up disease. My biggest problems are speech and swallowing. It is not fun at all, not being able to talk and eat half the time ! My mind is always racing with ideas, things that I want to do, places that I wish to visit but instead my body say’s NO… I feel trapped in my own body.

MG can be very isolating making one feel like a crumpled piece of a useless paper. This disease can take you to the darkest places if you let it. It scares every bit of me. I have lost everything I ever worked so hard for. For a time I question my faith, I questioned God. It took time for me to see that all of this materialistic stuff doesn’t matter. I may walk and talk drunk at times, I lay down a lot, and this is my life with MG. Am I too much of a downer? Maybe.

The worst part of this disease for me was not being able to smile or have a normal vision. Writing about your life, good or bad is courageous. Yes, I can seem like a downer if you don’t understand. Scary? Absolutely !! Will I change how I write about Myasthenia Gravis? Never !!

I tend to isolate myself when I have flare ups because people really don’t understand. One day I feel like running a marathon & look like a champion. The next day I may be feeling weak and not solid like a jello and look like a limp dish rag. So it is hard for someone to understand or even believe that MG flare ups can come so sudden. I get tired of trying to explain to people that I’m tired & I’m weak. Actually.. I am tired of being sick and sick of being tired.

Other than the MG life is good. Trying to hold on to life with MG is the hardest part of this disease. When I am too sick to move I have nothing to do but remember the days when I could run free. I may not look the way I did a year ago but that really doesn’t change who I am inside !!

It takes time to understand MG. There are times when I think I am not going to make it, and then I spring back to life.. just to fall again. It is truly unpredictable !!

It is hard to always stay positive. Sometimes I have to give in to the sadness, but I remind myself that emotions do pass… This phase too shall pass. I can pull myself together and lift my head up a little higher tomorrow. It’s okay to be mad and dislike what is happening. I keep reminding myself that I have so much in life to do yet. The power of support is amazing and I am thankful to everyone who have supported me.

Happiness is just around the corner waiting for me and I am ready to embrace it…”Never give up on life. More importantly, never give up on yourself.”

Sadly, life throws some pretty rough curves. However, “Every day is a new day.” With each new day we have the opportunity for a new beginning. We can choose to make it a good day, or choose to wallow in self-pity, and make it a bad day. Each of us has our own demons to fight. We can live life to the fullest of our abilities with dignity and grace. When we can’t see the forest for the trees because we are focused on for the sky to fall, we miss all the beauty of life behind the trees. “Life was made to live” so, “live it !”


On a last note. “The sun is shining, I did take my pills and it is a happy day !!”

I love my husband and my family. And it is for them today, that I sustain and endure this plight. My family is my strength. There is HOPE and I wait for a better phase ahead.

Mother’s Day Gift 😘

Every year children ask their mother the same question. After thinking about it, she decided she would finally give them the answer:

“What do I want for Mother’s Day? I want you. I want you to keep coming around, I want you to bring your happiness around, I want you to ask me questions, ask my advice, tell me your problems, ask for my opinion, ask for my help. I want you to come over and rant about your problems, rant about life, rant about just whatever. I want you to continue sharing your life with me. Come over and laugh with me. Hearing you laugh is the best music to my ears.

I spent the better part of my life raising you the best way I knew how. Now, give me a chance to sit back and admire my work. Raid the refrigerator to look out for your favourite delicacy. Surf through my shopping bags. Take me through the never-ending family photoshoots. In fact, I wouldn’t want it any other way. I want you to spend your money making a better life for you and your family, I have the things I need. I don’t want any materialistic gift. Gift me moments. I want to see you happy and healthy. When you ask me what I want for Mother’s Day, I say “nothing” because you’ve already been giving me my gift all year. It is the time spent with you. My biggest gift is you. I want you..”

That is all a mother really wants. Thank you mom for making me independent and to take responsibility of my actions. Thank you for giving me unconditional love without expecting anything in return. Thank you for being by my side when I cried at nights… when I am not well…

I just can’t thank you enough. 

I love you !!